Something to Prove

Today is another great day for Cait. I went into see her and Dr. Berger came right up to me and said one word, "Fantastic." That totally made my day. He went on to say that he can't believe just how wonderful she is doing and that he is amazed at how well her lungs are doing. Yesterday her oxygen was at a four and today she is down to a one. Her nurse said she is doing great with no drops in her stats. WAY TO GO LITTLE GIRL!!!! The best news being we might be able to hold her tonight or tomorrow depending on how her stats are. We also get to start helping with changing her diaper. Who ever thought we would look forward to that.

We are so grateful to our Heavenly Father for the progress that our little girl is making. Every day she is proving to all around her that she has her own plans for this life despite the odds she was given which, by the way, was around 1%. She has blessed our family so much already and we look forward to seeing her each day.

-Candice

Round 2 to Cait...T.K.O.

GREAT NEWS! We walked into the NICU today and were shocked to see Cait without breathing tubes! She is off the nitric oxide, ventilator, and looking great. It was so nice to see her face without all the tubes. Cait has oxygen tubes running to her nose, but other than that she is breathing fine on her own.

The doctor saw us walk in and came right over and had a big smile on her face. Doctor Mohan said she was doing extremely well and that her brain ultrasound had come back at a stable Level 3 with slight improvement in her arteries. We felt like jumping up and down, but settled for hugs with the doctor and nurses. What a huge improvement in just a week. We will definitely call this round in Cait's favor!

The nurses surprised us with a picture of Cait they took with all of her tubes and thing removed, and a note attached that said, "Look Mom, no tubes!" Cait is so funny, with her wrinkly skin and funny faces she makes. We were holding her hands through the incubator and she gave us a little cry. It was amazing to hear her, and see her taking breaths on her own. She is amazing and a strong little fighter...what a will she has. Eat your heart out ROCKY!

-Dale

Round 1 to Cait

What a little fighter we have on our hands. Cait's doctors and nurses are ecstatic about her progress and improvement over the past 48 hours. She has reduced her need for the nitric oxide a considerable amount this morning and hopefully will be weened from it completely by tomorrow morning. Her ventilation requirements have also been reduced, with minimal drops on the rest of her vital stats. Way to go Cait!

They have Cait scheduled for another brain ultrasound in the morning. We hope and pray that these results will be positive as well. At her last ultrasound she was at a Level 3 with a bi-lateral brain bleed. If there is, or will be, any more bleeding it should show up now, as the full extent of brain bleeds usually fully manifest themselves in about 7 days in pre-term babies. This is the scary part. We are hoping the current bleed/clots have not broken down into smaller pieces causing the arteries in her head to become blocked, causing neurological damage. We hope to report Round 2 tomorrow will be in Cait's favor as well.

Our family has a lot to be thankful for today, besides elastic waistband in our pants. What a blessing it is to have Cait here with us. We know that even if Cait doesn't win the rounds ahead of her, our family will ultimately win the fight, because we are blessed to be an eternal family...Families are Forever!

-Dale

Back and Forth

Well, it is so nice to be home with my boys. They are so sweet and helpful. Celtin has been opening doors for me and telling me he will help me so I don't have to bend over. They both are very anxious to see their sister but that will have to wait for now. Tonight they got to hang out in the Ronald McDonald room while I sat with Cait. They thought that was pretty cool.

The last five days have been CRAZY to say the least. I was home last night for about two hours before we were back at the hospital with Cait. She is so tiny and I can't stand the thought of her being without family. Even though we can only touch her with a finger it makes me feel as though we are doing something to let her know that we are there and that we love her.

Today was a good day for Cait. We got a call this morning from her Doctor saying that her chest x-ray had come back looking very good. No signs of pulmonary hypoplasia which is what the Doctors were most concerned about before she was born. She has also continued to slowly come down on her nitric oxide and respirator levels. No big leaps and bounds but rather tiny steps in the right direction.

Before she was born I was so scared about how we would get through this but when you see your child for the first time and you are filled with a love like nothing in this world you suddenly become stronger than before. You are able to handle things that you didn't think possible because that little baby is worth it.

I'd like to say Thank You to everyone for all the prayers and kind words of support. Some of you have asked what you can do to help and right now what's helping us the most is to have the support of such wonderful friends and family. We know that we can call on any of you at any time for help and that alone is a great comfort.

-Candice

Home Sweet Home

Giving this post a title was interesting. I thought about the term Home Sweet Home and what that really means. I was able to bring Candice home from the hospital this afternoon and what a great feeling it is to have her back home with us after several weeks in the hospital. The spirit Candice brings to our home truly does make it, Home Sweet Home. I have missed that.

It was hard for us to say goodbye to Cait before we left the hospital, knowing that she would no longer be just down the hall. We know she is in good hands. We had a great update from Cait's doctor today. She is making small improvements on her oxygen levels, but her jaundice levels have increased. She will continue to receive photo-therapy treatment for probably another week or so.

We are able to hold her hands through the openings in the incubator, which has been a choice experience for the both of us. Sometimes she will grab hold of your little finger and not let go. She is so strong. I say that more in a spiritual way, than physical. Her strength is our strength. We hope at some point we will bring Cait home so that she too can be apart of our Home Sweet Home!
-Dale

Baby Steps

Candice and I were on pins and needles last night anticipating Cait's EKG and ultrasound this morning. After a prayer and a quick walk to the NICU we were greeted by the sight of the cutest little girl. Cait was just being hooked back up to the machines when we arrived. It was nice to see her off the photo-therapy lights which are blue and bright.

We sat and visited with the doctor about Cait for a bit, and knew that she was giving us the positives before the negatives. With Candice's hand in mine we were told Cait's brain hemorrhage has now become a bi-lateral LEVEL 3. Not the news we wanted but hopefully these blood clots in her brain will not start to break apart and obstruct the arteries in her brain causing brain damage. The doctor was very reassuring saying she has seen babies who are perfectly normal after a hemorrhage of this magnitude, but has also seen the obverse in severe developmental issues.

The clots can resolve themselves over time and we hope this will be the case in Cait's condition. Hopefully the clots will not break apart into little pieces causing damage. Again, it is reassuring to know that we are not alone in this. The overwhelming support has been much needed and appreciated. When I started this blog for Candice I thought it would be a fun way to have a few people keep tabs on her and her experience. Now, she has had hundreds of views on her blog, lots of comments and e-mails of support and love. Who knew that our little old blog would be such a hit. So again, many thanks to all of you. We know her progress, although baby steps, is a direct result of your faith and prayers.

Hanging On

Cait is having a rough day, today. We saw her for about an hour today, and are still amazed she is here. She is having a blood transfusion today. The NICU doctors and nurses are very supportive and seem like extended family. Cait will have another brain ultrasound tomorrow morning to monitor the bleeding in her brain. Right now the brain hemorrhage is at a Level 1, being minimal with Level 4 being severe. The first 72-hours are critical for hemorrhaging and hopefully the ultrasound in the morning will show no increase in blood.

I guess this is life in the NICU, ups and downs, good days and bad days. That said, we still believe that any day with little Cait is a great day that we have been blessed to have with her.